LeukaNET e.V. (Munich) is looking for a Scientific Engagement Manager / Project Manager

Were Hiring

The Munich-based non-profit patient association LeukaNET e.V. is looking for a Scientific Engagement Manager / Project Manager who will help manage and drive cancer patient engagement in initiatives like the EU HARMONY Alliance as well as scientific projects of the patient community in Chronic Myeloid Leukemia. Want to spend your life on something for a purpose? Check this out!

Position: Scientific Engagement Manager / Project Manager
Contract: Full-time / permanent
Location: Munich (mainly home office, plus our office in Giesing)
Start: immediately / as soon as possible
Salary: 40.000 EUR gross per annum

About the position

The Scientific Engagement Manager / Project Manager will primarily be responsible for the management, engagement and content development mainly of the following initiatives:

  • Coordinating patient advocacy in the EU HARMONY Alliance
    • Coordination of patient involvement in the EU projects IMI HARMONY and HARMONY PLUS through their work packages 6 and 4 which LeukaNET coordinates
    • Continuous communication and engagement with the pan-European patient organisations involved
    • Generation of content for potential publications, newsletter articles, etc addressed to scientific and lay audiences
    • Proactively think about topics and research questions that need addressing
    • Research and planning of effective and engaging content ideas for topics that matter to the European hematology community
    • Engagement with clinicians and other stakeholders involved in IMI HARMONY, as well as the project management office
    • Representation of the patient community and the work package lead at HARMONY meetings and calls
    • Review of draft documents, providing feedback, and coordination of feedback from all patient organisations involved
    • Coordination of all persons involved and ensuring timelines are met
  • Coordinating and supporting scientific projects for the patient community in Chronic Myeloid Leukemia (CML) in Germany and internationally
    • Coordinating the establishment and implementation of a patient community-driven “pathway to cure” programme, ensuring the link between the CML-CAB and the HARMONY Programme. Tasks also include also logistics of meetings; content creation and/or coordination; fundraising; preparation of agenda, materials; documentation and reporting; related communication with community members, academic partners and industry partners
    • Contribution to the preparation and conduct of the CML Advocates Network’s CABs.
  • Monitoring of relevant medical conferences (e.g. ASH, EHA, ESH, etc) and writing lay-friendly reports
  • Providing training to patient advocates and lay audiences about relevant scientific topics

The tasks are subject to change depending on needs of the organisation and the projects.

About you

  • MD, PhD, PharmD or MSc and experience in relevant therapeutic areas or life sciences – preferably specifically in haematology
  • 5+ years of experience in a related field – preferably working in a non-profit organisation, clinical research or medical/scientific setting
  • Excellent project management and time management skills
  • Strong listening and communication skills
  • Capacity to work both independently and collaboratively
  • Ability to work efficiently without compromising quality or accuracy
  • Demonstrated excellence in writing, proofreading, and editing in English, preferably C2 level. German language skills are not required.
  • Understanding and experience in the research and development of new medicines and how they are made available to patients in Europe
  • Ability to explain complex scientific terms and knowledge into lay language
  • Willingness to listen to the cancer patient community and empower them in their advocacy work
  • Experience in working with researchers, doctors and representatives from the pharmaceutical industry
  • Good analytical, numerical abilities and ability to interpret complex information
  • Competent in a range of software including Microsoft Office, other project-related tools as needed.

We offer

  • An exciting position in an NGO that operates internationally and serves a social purpose in the area of patient advocacy
  • Full-time position with flexibility, permanent employment contract under German law
  • Working in a young, dynamic and multi-cultural team working from different European cities

About LeukaNET e.V.

LeukaNET e.V. is a non-profit association established in Munich, Germany, in 2003. Its roots and main activities are running the patient-run, independent virtual patient community leukaemie-online.de for leukaemia patients and their families in German-speaking countries. Its goals are to support patients and their carers by providing background information and news about research, treatment and care as well as to run and moderate discussion forum, social media channels, online seminars and patient meetings.

With its mission to strengthen patient-centric clinical research and collaboration of the patient community with researchers, LeukaNET e.V. collaborates very closely with patient organisations and research organisations all across the world. LeukaNET is a co-founder of the CML Advocates Network. It collaborates closely e.g. with the German CML Study Group and is a steering committee member of the German CML Alliance. It is a consortium member and work package leader of the European research projects IMI HARMONY and IMI HARMONY-PLUS.

About the HARMONY Alliance

The Big Data For Better Outcomes Programme is an umbrella programme of the Innovative Medicines Initiative 2 (IMI2). IMI2 is a collaboration between the European Union and European Federation of Pharmaceutical Industries and Associations (EFPIA) and is the world’s largest public-private partnership (PPP) in the life sciences which funds more than 140 EU projects.

The HARMONY Alliance, consisting of the EU-funded IMI projects HARMONY (2017-2022) and the HARMONY-PLUS (2020-2023), helps improve the prognosis and outcome of patients with hematological cancers, driven by knowledge derived from the combination and analysis of complex data. Therefore, a core part of HARMONY is its Patient Cluster, which is currently made up of 7 pan-European patient organizations. Each of these organizations represents the 7 blood cancers HARMONY is researching. The HARMONY Patient Cluster plays an important role in designing research projects to make sure they reflect the patient view. The patient cluster is currently being extended.

About the CML Advocates Network and the CML Community Advisory Board

The CML Advocates Network  is an active network specifically for leaders of Chronic Myeloid Leukemia (CML) patient groups, connecting 126 patient organisations in 93 countries on all continents. It was set-up and is run by CML patients and carers. Its aim is to facilitate and support best practice sharing among patient advocates across the world.

The CML Community Advisory Board (CML-CAB) is a working group of the CML Advocates Network. It is a global panel of 18 leading patient advocates from all world regions (“CML-CAB members”) who all speak from the unique perspective of a CML patient or relative. CML-CAB members work together to address issues of strategic importance to the community and advocate for the best possible research and equal access to the most innovative treatment & care for CML patients around the world. CML-CAB monitors pharmaceutical developments and research in CML through active and targeted interaction, long-term cooperation and continued dialogue with pharmaceutical partners, regulators, medical experts, and the scientific CML-community.

How to apply

Apply for this job offer by sending your CV and your motivation letter to Jan Geissler <> with the subject "Application Scientific Engagement Manager / Project Manager".

 

Unser Buch

Unser Buch "Manchmal ein Kunststück: 16 Drahtseilakte des Lebens mit Leukämie" porträtiert auf 128 Seiten sechzehn Menschen mit CML in Wort und Bild. Nun erhältlich!

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