Leukämie-Online e.V. / LeukaNET is an independent and vital online community for leukaemia patients in German-speaking countries. This web-based network supports patients by translating and reporting news about new research publications and various treatment options for leukaemia. It also provides background information on different forms of the disease, treatment options and other relevant information necessary to talk to a patient's physician of choice. Members of the community can participate in a highly frequented discussion forum, ask questions and share their own experience. They can also submit news articles to the website, review books, suggest web links, or update the patient-friendly glossary on haematology.
Leukämie-Online was launched in April 2002 by Jan Geissler, having received his diagnosis of chronic myeloid leukaemia (CML), a rare cancer characterised by the presence of a chromosomal abnormality in blood cells, at the age of 28. At the time of Jan’s diagnosis, the only well-tested treatment options were stem-cell transplantation and Interferon-alpha. An experimental drug that had shown promising results in the US in patients with CML was also being tested in clinical trials in Germany. Jan joined one of these early-phase clinical trials.
Leukämie-Online has no commercial interest and is a registered not-for-profit charity in Germany. The online community has been developed, run and financed by patients.
Even though the website is in German language only, it collaborates very closely with patient organisations all across the world, as research reports which are a key source of information for patients today are usually published in English. Leukämie-Online has been a co-founding member of the CML Advocates Network which connects almost 130 patient organisations in more than 90 countries today. Our Web Links Database also contains references to relevant information on CML in English language on the internet.