About Leukämie-Online / LeukaNET PDF Drucken
Montag, den 19. Juli 2010

Leukämie-Online e.V. / LeukaNET is an independent and vital virtual community for leukaemia patients in German-speaking countries. This web-based network provides support to patients by translating and reporting news about new research publications and various treatment options for leukaemia. The web site also provides background information about different forms of the disease, about treatment options and other relevant information necessary to talk to a patient's physician of choice. Members of the community can participate in a highly frequented discussion forum and ask questions, as well as share their own experience. They can also submit news articles to the web site, review books, suggest web links, or update the patient-friendly glossary on haematology.

Leukämie-Online was launched in April 2002 by Jan Geissler, having received his diagnosis of chronic myeloid leukaemia ( Glossary Link CML), a rare cancer characterized by the presence of a chromosomal abnormality in blood cells, at the age of 28. At the time of Jan’s diagnosis, the only well-tested treatment options were stem-cell Glossary Link transplantation and Glossary Link Interferon-alpha. An experimental drug that had shown promising results in the US in patients with Glossary Link CML was also being tested in clinical trials in Germany. Jan joined one of those early-phase clinical trials.

Leukämie-Online has no commercial interests and is a registered not-for-profit charity in Germany. The web community has been developed, run and financed by patients.

Even though the site is in German language only, the site provides collaborates very closely with patient organisations Glossary Link all across the world, as research reports is usually published in English language which are a key source of information for patients today. Leukämie-Online has been a co-founding member of the CML Advocates Network which connects more than 50 leukemia patient groups in more than 40 countries today. Our Web Links Database contains also references to relevant information on Glossary Link CML in English language on the web.

Our Memberships

Leukämie-Online is a founding member of the CML Advocates Network, a global platform for more than 50 Glossary Link CML patient group in more than 40 countries. CMLan_150px
Leukämie-Online is also a founding member of the European Cancer Patient Coalition (ECPC) which was established in 2004 to represent the views of cancer patients in the EU, to influence the European healthcare debate, to train patient group representatives, and to provide a forum for European patients to exchange information. More than 315 cancer patient organisations in 42 countries are members of ECPC today.
Logo ECPC
Leukämie-Online is a member of the Deutsche Leukämie- und Lymphom-Hilfe e.V (German Leukemia and Lymphoma Support, Glossary Link DLH). The Glossary Link DLH, founded in 1995, has become Germany's largest advocacy group representing patients with blood diseases and their family members. It provides local support groups in Glossary Link all major regions in Germany and has become very influential in representing blood cancer patients in various health policy forums in Germany. Logo DHL


Contact Us

Any feedback is highly appreciated. Please feel free to contact us via email at Diese E-Mail-Adresse ist gegen Spambots geschützt! JavaScript muss aktiviert werden, damit sie angezeigt werden kann. or via our feedback page.

 

Anmelden/Login




Schwierigkeiten beim Anmelden in Forum? Hier lesen.

Ähnliche Artikel

Keine ähnlichen Artikel


Unser Buch

Unser Buch "Manchmal ein Kunststück: 16 Drahtseilakte des Lebens mit Leukämie" porträtiert auf 128 Seiten sechzehn Menschen mit CML in Wort und Bild. Nun erhältlich!Buch "Manchmal ein Kunststück"

Aktuelle Termine

Letzter Monat April 2014 Nächster Monat
So Mo Di Mi Do Fr Sa
week 14 1 2 3 4 5
week 15 6 7 8 9 10 11 12
week 16 13 14 15 16 17 18 19
week 17 20 21 22 23 24 25 26
week 18 27 28 29 30